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Poland's syndrome

Jeanne

Message 4 of 48 Previous Next



I have a 9 year old daughter with Polands Syndrome and she is just now asking questions and I am having a really hard time trying to search the internet and medical profession for answers. I would love any feed back on finding an older female with this condition so that I may have answers in dealing with "development" for my daughter. Thanks for any help. Also I would be interested in emailing anybody as a support group considering that I seem to have hit a block wall in doing this face to face at any local hospital. Excuse me please if I sound upset, it's pure frustration.

 


   
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