Loraane Hendriks
I have had IC for 58 years! The last 10, have Vulvadynia, Fibromyalgia, Irritable Bowel Sydrome, Chronic Fatigue..all related. The only thing that can give yu more sleep is a sleeping aide. There are Herbs, like Kava & Valerian or new sleeping pills like Ambien & Sonatol, neither like the old time sleepinng pills and have NO hangovers. IC DOES get woorse..MUCH worse. & is different for everybody. Do you belong to the ICA? I would HIGHLY recommend it as you get the latest research, the latest knowledge of medications, the advantage of a Doctors' Forum in each Update. They also have a web site and an emaail which are tremendously helpful. There is a web site called ICN which is FULL of info. I am on the IC message board on which I communicate with others who have it (about 400) and we all help each other. IC is nothing one can handle alone! MANY doctors, even Urologists do NOT know too much about it as it was only discovered in 1983. Since it is NOT an infection and does NOT show up under a microscope, MANY doctors say it isn't THERE & it is all in your head. I had that for 44 years before it was discoverd by a female med student but, less than a year ago, the top Urol. in Omaha (where I live) had a nurse standing by me who pointed to her head and told meit was all in my head..and the doc said nothing! SO..you need sources of information. LHend12826@aol.com You may email me if you wish. Lorane