Robyn
my mother suffers from this disease, She has to take so much medication. She thinks that she will die soon because she had a heart attack 11years ago. This disease is hard on the heart and the lungs from what we hear. She has shrunk 2 inches she is now 4ft.9in.She feels like she is alone in this world. I can't find her a doctor that knows anything about it. She lives in such a small town, and it hurts for her to ride very far in a vehicle. If there is anyone out there that has any suggestions for her, or just a kind word to say to her, or maybe even a doctor that can help her. We would be so appreciative of your thoughts. She is the best mom in the world, I'm too young to lose her now, and she is too young to suffer this way. Thanks Sincerely Robyn