Lori
I am 28 years old and was just diagnosed with EDS - hypermobility. I have had chronically dislocating knees since age 7 and at age 4 my daughter started dislocating her knee. This led me to search for a solution to the "knee problem". I ended up self-diagnosing myself with EDS and had it confirmed by a geneticist. It is alittle hard to absorb that after 9 knee surgeries and over 300 dislocations, none of the "best" doctors I had figured it out. I would be interested in speaking to anyone who has any information on helping to alleve the knee dislocations...specifically for my 8 year old. This is all new to me and I would also like to just chat or share information (i did a ton of research). Please feel free to email me