Janice
Hello, Did your daughter have SED Dwarfism? How is she doing now? Right now my grandson has started running a low fever and his mucous is very thick and his heartbeat slows down to 20 & 30 a couple of times a week until they can clear his trach tube out. I am so afraid everytime it happens that he will not pull out of this. How long was your little girl in the hospital? We already know that he will have to probably go home with the trach and feeding tube if & when he ever does go home. Please feel free to email me anytime. I need all the info I can get. Thanks, Janice