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dwarfism

Janice

Message 6 of 29 Previous Next



I saw your message on healthlink and My grandson was born Dec 10,2000. He has Spondyloepiphyseal Dyspalsia Congenita. He has a feeding tube and the Dr. put in a trach about a month ago. He is still in the PICU. I cannot find any info on this. What type of dwarfism does your daughter have? How is she? I sure need support and I am sure you do to. Please feel free to email me. I would love to talk. Janice

 
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