Jann, I wrote a response to your message yesterday but am new to the internet and not sure if I did it properly. I wanted you to have my email address in case you wanted to have it. I have hypertrophic cardiomyopathy and live in a small city where not even the doctors have seen a case like mine. It's very isolating. I am dealing with a lot of issues right now and have also lost relatives (4) to this condition. It's very frightening but I am being very brave (ha ha). Anyway, I just lost my mom in April to cancer and I feel for what you're going through. If you wouldn't mind, could you tell me more about what happened to your husband? Did he know he had a condition? Where did it happen? I am trying to put together an organization to help inform patients with HOCM about the risks of sudden death and what they can do about it. Any information you have to contribute would be helpful, plus I really really care. My e-mail address is: firstname.lastname@example.org. God bless.