This is apparently a rare condition and I hope you get the response you are looking for. It was my father, not my husband, who died suddenly in 1982, and I have just been diagosed with the same inherited condition. It is awful to lose someone suddenly, my father and I were so close and we had so many plans. For years I couldn't talk about him, it was so painful. Finally I started talking to him in my head or even out loud sometimes when something happened that he would have liked. Simple things like, my dad loved nature and if I saw a pretty flower or something, I'd share it with him. And I try to keep his best qualities inside me. It's the only way I can be with him now and at this point I'll take anything. Not to think of him and not to enjoy anything is like depriving him of the only existence I can give him--which is through my sight and my love. I still love him and in my way still have a relationshiop with him and this comforts me. But I miss him so much. I don't know you, but I feel for you. Take care of yourself.