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OSTEOGENESIS IMPERFECTA ( BRITTLE BONES)

Lisa

Message 15 of 25 Previous Next



Barbara, I have a 17 month old baby who has had two broken bones, one a fracture that just happened yesterday. I am so scared and I need to find any support possible from a parent who has lived this. Did your daughter suffer from numerous bone issues? How did you know she had it? My daughter also had a tint of blue in her eyes (blue scalera) that the eye doctor never told me could be related to bones. Who did you take your daughter to? I am seriously considering taking our baby to the Mayo Clinic. Please write back and let me know your story. Sometimes it is easier to know that you are not the only person who has ever had to deal with this.

 


   
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