Jerry Paige
Hi; I have a daughter who was born with spina bifida. She is now 30 years old. I would love to share with someone,however that apparently isn't possible using HealthlinkUSA. I assume for reasons of privacy they edit addresses. I know I've tried on several ocassions to respond to people interested in one-on-one chats with no success. If you are unable to reach me I suggest you conatact the National Spina Bifida Association. I expect today there are more parent support groups than there were 30 years ago. Hang in there and good luck. Jerry Paige