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Sjogren's Syndrome and Chronic KStones.

David F.

Message 3 of 6 Previous Next



Sharon, I feel bad. I post something and forget i posted it to come find my name and my story writen by me all by coinsidence, so forgetful lately. Well your story seems to be what happened with me. I was put on Poly-Citrate syrup (orange), but i'm not able to tolerate it on my stomach. My nerphologist and i care trying to find out if its manufactured differently. I need a pill if possible, so if you know of this (perhaps you use a pill) please let me know. How did you know with yourself when you had reversed the effects by taking the K-Citrate? Is it as simple as monitoring stone formation by doing IVP's or IUB's? Or isn't this what you reversed? i'm so confussed latley. I mean i'm told i have Sjorgrens by only the blood tests, but positive on 3 differnt tries. My eye test with that special paper came up negative as i soaked the paper quickly. They never did a lip biopsy. I'm frustrated because my SS symptoms have nothing textbook, nothing regarding dryness...as of now this is the case. Doing research for my problem isn't as easy as for dry symptoms. Is it fair for me to assume since i'm a young 22 years old that i will only degenerate over the years at a more pronounced rate. I'm saying this since most people that get it are in their late middle ages and my onset is much earlier then theirs. Actually i shouldn't forget oncet and diagnosis are different. It is comforting nonetheless that you have a similar story to share with me. Oh, i passed another stone last monday 2 days after having my tonsils removed. Oh, i'm so frustrated. I might resond to your last post again since i didn't read it over as much as i shoulda to have gotten what i coulda from you. Best wishes, take care...dave.

 


   
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