shirley
Hi logged on to this site for the first time today, I was diagnosed with Dystonia Two years ago , after going to the doctors for a period of 27 years,and the doctor telling me I had Anxiety , If it was not for me persuing this problem of my head shaking from side to side, I would still be going back and forth to the doctors. I was given some information about a Professor Findley based in haverigg hospital, Essex. I took the information to my Doctor who got me a referal to go to see him, as soon as I walked in the door, he looked at me and said you have a condition called Dystonia, and I can help you. As you can imagine after 27 years withn a problem that no one seem to understand I cried. Ihave the Bot toxin injections every 3 months which helps but they start wareing off after 2 months, this causes me depression. Ialso take Primodone Solution which they have just stopped making. Could anyone tell me of any other Medication or help