Sandy
Hi. Sorry you are hurting. Just a hunch, but you might want to check out www.wacma.com Your symptoms sound a lot like the one we folks with Chiari have. Be sure to check out the message board and read what fellow sufferers have to say, too. If any of it sounds familiar to you, then you'll have found a great resource to help you get the docs to give you better care. Good luck! ~Sandy