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CYSTIC FIBROSIS IN MY 6 YEAR OLD

JILL

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DEAR NANCY, MY NEPHEW WHO IS NOW I8 YEARS OLD ON JUNE 4TH, HAS CF, HE WAS DIOGNOSED WHEN HE WAS 3 MONTHS OLD, OUR LOCAL DOCTORS DID'NT KNOW WHAT HE HAD SO THEY SENT OUR FAMILY TO BUFFALO CHILDRENS HOSPITAL,HE IS DOING BEAUTIFUL TODAY, HIS DECEASE IS MAINLY IN HIS PANCREASE. HE TAKES ENZYMES TO DIGEST ALL HIS FOOD. HE WOULD DIE WITH OUT THEM, SO FAR HIS LUNGS ARE CLEAR,THANK GOD, PLEASE EMAIL ME IF YOU'D LIKE SO I CAN TELL YOU MORE OF WHAT I KNOW, IM SO SURPRISED THEY HAVE NOT CAUGHT IT THIS FAR.I THINK YOU SHOULD FIND EVERY BIT OF INFO YOU CAN, THEY ARE GETTING SO CLOSE NOW TO A CURE, I WILL KEEP YOU AND YOUR LITTLE GIRL IN MY PRAYERS, WITH LEARNING ALL ABOUT C,F THERE IS A LOT WE CAN DO.

 


   
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