Abby
HI, Really sorry to know you have this, but glad to be able to talk to others who do. I was dx'd in 2000,mine at that time, was at C-2 through T-2. NO treatment except pain control meds..Yuck ! but have recently began having more symptoms.Finally found an M.D. who admitted he knew nothing,but who was willing to learn.It's been really hard, my life changed 180 degrees from before March of 2000. Gradual decline, though more rapid for the past couple of weeks. I am searching now for more about this, and becoming more and more afraid. I would like to talk to anyone who has this. Thanks, Abby