Roseanna
Hello. My name is Roseanna and my cousin has been very sick and they suspect it is porphyria. She has been tested several times through 24 hour urine and blood and has had different results each time. She also is unable to find a specialist in the New York area. I know that she knows of a doctor in New Brunswick who treats a porphyria patient. If you send her an email she will give you the name of the doctor. Maybe this person can help your husband. If not email me directly and I will try to get a hold of the doctor's name for you. Good luck to you and your husband. Stay well.