Kadie
Hi- My name is Kadie. I am 15 years old and I live in Las Vegas, NV. I have recently been diagnose with Ehlers danlos Syndrome (type 3), though I have been having problems for over 5 years. Most of my problems are in my knees. I have had two failed surgeries and on July 10th I had another. I have arthritis in every one of my joints. In Las Vegas there is no one who really knows anything about EDS. I was wondering if you knew of any good researchers or Doctors (anywhere) who know about this syndrome. Also I would like to hear about you and your story. I have never talked to anyone with EDS before so I have nothing or noone to compare myself to. The doctors that I do have say that EDS has hit me early and fast. I also have a syndrome called eagle's syndrome which is calcification of the ligament in my jaw. They say that no one else with eds has had both of them and they are trying to find out if they are conected in some sort of way. Well if you can, I would like you to write back to me. I hope to hear from you soon. Thanks, Kadie