Allison
I have just been diagnosed with this condition and I am looking for some information on it. My doctor told me that this is a very rare condition and that it would be hard to find any information on this. I had what we thought was a migraine for 5 days before they would put me in the hospital. There they performed an MRI which was normal and then proceeded to do a spinal tap. That was when they found that I was producing too much spinal fluid and all of the pressure had built up in my neck and head. If anyone has any information on this or knows of someone who has it, please let me know. Thank you.