Moeyj
We are awaiting a diagnosis for my 21 year old son. He has 2 anuerisms the size of a man's fist on his illiac artery. These run parallel to his ureters. The Doctors suspect ehlers danlos. These anuerisms are life threatening. I need help finding Doctors who are familar with this disease and can help my son. Although, we are working with a large medical center, they have given us little information and have admitted that the condition is so rare they have only seen 1-2 cases and neither have dealt with anuerisms. Any and all help would be greatly appreciated. Thank you and God bless.