Zehra SArim
Who diagnosed your daughter, your pediatrician? At All Childrens Hospital here in St. Louis, there is no specialist here and what they have given her is an unofficial diagnosis. She is being treated as if she does have it, but her pediatrician does not feel comfortable saying too much because he knows nothing about this and says I probably know more than he does. She is going to physical therapy and she has been wonderful. She's increased her left leg mobility by 15 degrees and I didn't know she had limited mobiltiy when we started, but she's still having pain, and alot of it. It's like she says it feels like her back and leg are on fire because she hurt her back by falling out of tree and now it's going to her left leg. What are your daughter's symtoms? My daughter has burning pain, sometimes she just cries and cries, also, barametric change, cold weather, rain all make her agonize in pain. Also, sometimes, I can barely touch her and she says it hurts, but not all the time. I would love to talk to you because right now they are giving my daughter nothing for the pain. We will be staring her on pain management psychologist and hopefully that will help. I look forward to talking with you. Zehra