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50 year old with Fibrous dysplasis since age 12

Tim

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I have had trouble with my bones since I was little. Broke my right femur when I was 7, 11, and 15. Had bone growths removed from toes, fingers, and metatarsals (sp?) when I was 7 -15, 19, and 30. Ahh, my medical insurance company is _never_ going to make money off me! Lately I have been talking to a geneticist at the Royal Childrens Hosp in Melbourne, Aust. (Again, I have also been told that fibrous displaysia is a "childhood disease". I'm 36...) He mentioned Olliers Disease, and also multiple osteo chrondomas (sp?) They have extracted blood and sent it off to the US to do genetic testing. I haven't done any searching on the web for info on this condition. Have either of you? Look forward to talking to you Tim

 


   
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