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SPASMODIC TORTICOLLIS

Deborah

Message 22 of 28 Previous Next



I have been diagnosed with Focal Dystonia. My symptoms are those of ST that most of you mentioned. My head pulls to the right. I was in a car accident in June and after that I gradually started feeling a tightness in my chin up to the corner on my mouth on the right side, then one day my mouth pulled down briefly and let up. I thought I was having a stroke. I was admitted to the hospital for 3 days with doctors thinking I was having mini-strokes. The following week I started having awful spasms and contractions ended up in urgent care one day and the ER the next. I followed up with a neurologist that told me initally I was having hemifacial spasms. He wrote a prescription and and sent me on my way with no information nothing. Needless to say I was devistated. I later saw my Physical Therapist who gave me some insite on dystonia. I still have a lot of questions. I noticed reading thorugh the messages from everyone it's mostly women that have responded and that it seems that the symptoms get worse. I am about to have a repeat fussion of C5&C6 and wonder how that will affect the pulling and contractions in my neck. Are any support groups available on line or if any one can share info let me know.

 


   
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