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Stickler Syndrome

Christy

Message 5 of 9 Previous Next



HI and thank you for your reply. Our daughter ahd a detached retina two and a half years ago. She is now completely blind in her left eye. We have really kept a close watch on her eyes but it happened almost overnight. What other symptoms do you have of Stickler's? Meighan has a full cleft palate wich has been repaired, flat nasal bridge, slightly protruding eyes,and a heart murmer. They said that her heart is a little larger than it should be and has a valve that is leaking slowly. They are going to check her again in three months to see how it is doing and to see if she will have to go on heart medicine. What does mitral valve prolapse involve and how does it effect your everyday life. Hope to hear from you again soon, Christy

 


   
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