CHRISTINE
MY 2 YR OLD DAUGHTER HAS SPINA BIFIDA L3-L4. I WAS TOLD THAT ALL CHILDREN BORN W/ SPINA BIFIDA ARE ALSO BORN W/ ARNOLD CHIARI MALFORMATION. IN MY DAUGHTERS CASE IT IS VERY MINIMAL. HOW IT AFFECTS YOUR CHILD DEPENDS ON HOW SEVERE IT IS. YOUR CHILDS NEUROLOGIST SHOULD BE GIVING YOU ALL OF THIS INFO. IF NOT I WOULD TAKE YOUR CHILD TO ANOTHER DOCTOR. IVE BEEN THROUGH 3 DIFFERENT HOSPITALS FOR MY DAUGHTER. YOUR CHILD DOCTORS ARE VERY IMPORTANT. MY E-MAIL ADDRESS IS MCELROY124@HOTMAIL.COM I WOULD BE HAPPY TO TALK TO YOU ABOUT ANY OF YOUR CONCERNS. IT HELPS TO TALK TO OTHER PARENTS WHO ARE GOING THROUGH THE SAME THINGS AS YOU ARE.