I have read your message. My son Thomas is 17months and has just been diagnosed with leukodystrophy. He has a large head and at the moment it is still an unknown leukodystrophy. He is beautiful, he smiles and can crawl but he cannot weightbear or walk and we dont think he ever will. Thomas cannot talk either. I feel as though my life has been shattered and I feel totally helpless. We can only live in hope that someone might be able to help our children, never give up hope. You are not alone and our children are very special. Best wishes Helen in England.