julie& john
hi, were julie & john. we have 6 children ages 14/13/11/8 & 22 mnth twins.one of the twins zac has waardenburg syndrome is profoundly deaf and also has craniosynostosis.his front suture is fused also called trigonocephaly as his head is growing in a triangular shape. he was diagnoised this condition last year and is about to have reconstructive surgery in june this year.all's i can say is dont be to worried about your sons condition ,im sure things can be corrected and he will be in good hands if surgery is ever needed.if you need to speak or any advice please contact my email .take care.