Dear Nancy! Thank you for answering. Since we live in Norway, I find it difficult to contact American organisations. But I would very much like to hear from you again, and could you please tell how you are, what kind of treatment have you got, how well are you, for how long have you been diagnosed, how are your lungs, how is your liver, do you have any digestion-problems, there are so many questions...... Here in Norway they don`t know very much about the disease, especially not about the long-term outcome aso. Is it possible for you to answer all these questions? We would be very greatful! -Janne.