I am a 57 year old Alpha ZZ patient. There is an Alpha One Organization in Minnesota which could help you and also they do put out a Newsletter. Contact them at 1-800-521-3025 or (612)703-9979. Their address is: Alsph 1 Association, 8120 Penn Ave S., Suite 549, Minneapolis, Minnesota 55431-1326. From there they may be able to tell you how to joint the Alpha 1 email list on the computer. Good luck and if I can be of more help just let me know.