My son & his wife found out yesterday that they are unexpectedly pregnant & she is a carrier for Adrenoleukodystrophy (ALD). She is connected with Dr. Moser at John's Hopkins in Baltimore. We live in Arkansas. Anyone knowledgable or has any experiences with ALD what would your first actions be? and who would you contact? resources? Thanks for any help or information from anyone anywhere!! We are so worried & scared.