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Sarcoidosis

North

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Becky: I was diagnosed w/Sarc in 1985, have been in & out of remissions since then. Now on my 4th go around with the disease; last 2 have been neurosarc (brain/central nervous system involved). Have been experiencing lower left abdominal pain for months, can find no pattern or reason. All tests negative. Dr. thinks spleen is the problem. Would you please explain why yours had to be removed? Am currently on Prednisone & Methotrexate, but losing ground neurologically. Have done a ton of research on this disease, + have a lot of been there, survived that knowledge. Would be happy to correspond. If you e-mail me, please put something in subject line so I'll know it's about Sarc; I delete messages of people/subjects I don't know. Hope to hear from you. North

 


   
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