Cat
I am 41, female. I have Arnold-Chiari Type 1 with Syringomyelia. c-1 to t-8 syrinx. My entire rt side was affected, as if a line drawn down the middle. Miss dx'ed for 12+ yrs, In 95 had skull decompression. Was a guinia pig to get a morphine pump. I have ab HMO from hell and have 10 days to find dr to do refills and oral meds. I am progressing rapidly, has crept to left cheast and back(cape syndrome). I have spinal stenosis, drs want to do bone grafts tpo replace all of c-2 and 3/4 c-1. I had too much skull bone removed. The pain is worsening. I am scared, again. Peace, Cat