Hi jenny,I am like you,I have had IC since 1969. It is a terrible disease. I have been in surgery so many times for them to try to find out was wrong with me, and they couldn`t find anything. I findly found a Doctor in Dallas, Texas. He took one look at me and said that I had I.C. Please feel free to write to me on this. Maybe I can help you on this disease. I have learned a lot from experiementing.