Leslie
You are very fortunate to have been diagnosed early on. I, too, suffer from TOS and have since 1985. I began having the horrible pain right after a car accident. For 7 months, I was told that all I had was a pulled muscle, and was treated for that. After 7 months, I could not even hold a piece of paper in my hand. When I was finally diagnosed by a Cardiovascular/Thoracic surgeon, surgery was the only thing recommended to me. I had the first rib resection done the next day. That was 1986 and I still suffer today. I had several more surgeries done to the arm and contacted a disease called Reflex Sympathetic Dystrophy (RSD), a horribly painful disease that makes your body feel as if it is on fire. That was in 1991. Today, I am disabled and live in horrible pain that NEVER goes away. I am on morphine 4 times a day. I have had every type of treatment recommended, and some that are not recommended. Please do not fool around with this. I cannot give any factual numbers, but from my research, it seems as if a majority of the people with RSD that I have talked with started out with TOS.