Hilary
Susan, I know just how you feel. My 38 yr. old daughter was diagnosed with Sjogrens in May 1999 but she does not believe that that alone can make her feel so rotten. She has absolutely piled on the weight because the Sjogrens has affected the thyroid and she is now on Thyroxine for life. Did you put on heaps of weight? I am so worried about her I was thinking of taking her to the States - Harvard Medical School in Mass. or Mayo Clinic, but you don't seem to be getting anywhere with your medical providers there. Would like to hear from you on my e-mail address to maybe discuss this in a bit more detail, if you want to.