Sherry
Message 1 of 1
Hi, I was diagnosed over 3 years ago and have been receiving Botox injections every 3 months for 2 years now. Sometimes they help, sometimes they don't. However, the pain is such that you are constantly trying to keep your head still - that's where it all starts. I do know there is surgery available that has proven to be successful that I am looking into, if you want more information. I may do this myself. I am not as bad as most people with this condition, but I can feel it worsening. Please let me know if you need anymore information or if you just want to compare notes. Kind Regards, Sherry