Hi Tammy, It sounds as though you have a clear cut case of primary lymphedema. I would search out a physical therapist in your area who specializes in lymphedema treatment. You just need a referral from your general physician. The treatment is very effective, but you will need to understand that it will involve life-long control methods. If it is lymphedema and you do not treat it, it can progress to elephantiasis. Move quickly on this one.