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Spasmodic torticollis

Cindy

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I too have torticollis, my neck turns to the right. I have had this for 5 years now. It took 17 doctors and a trip to the mayo clinic to find out what I have. I am presently taking Botox injections every three months. The injections help for a while with the pain. The drug is very expensive and I am lucky that my insurance pays for most of them. Sometimes you can get a bad batch of Botox and it will not work that has happen to me and I had to go back three weeks later and get injected again. I am not working because of this painful disease but I can finally drive close to home on my own. My doctor said that this disease is either inherited or from a bad accident. Just don't give up.

 


   
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