Helen 7/22/03
Message 1 of 1
hello sue, i have just been diagnoised with mastocytosis and it ia hard. I have had this for 10 years and i went to every doctor i could find. i even went out of state searching. they know very little about this subject. i have reseached it and found most of my answers from the internet and other people. may i make a suggestion that you start a log and write down everything on a daily basis, this includes food, weather, how you felt that day and try to get a handle on things that trigger it. it is different for every person but you will have a track record. keep a folder on all the doctor does for you and the meds you are taking so you can get the right combination for you. this is not fun but you are your own best doctor because there is no cure just control