Hi, Sorry about your son. My cousin died 8 years ago of the disease at the age of 43. We learned of a product that I wish would have been available for him. It is called Immunocal. Have you ever heard of it? Your doctor should have told you about it. It is listed in the Physicians Desk Reference 2003, 02, & 01. Here is a site you can look at if you are interested he has helped us many times. www.immune-response.net/go/drmanuel Please do the research for your son. You will be surprised at the people that are using this product. Also how many childern's hospitals that know about Immunocal. I would like to hear from you if you are able. Best wishes to you and your family.