I'm so sorry for what you are experiencing. I have EBV, but affecting me more as fibromyalgia and severe piriformis syndrome (muscle in hips choking sciatic nerves -- makes impossible to sit or stand for more than a short time). had for 4 years and spent thousands on at least 40 docs, and my husband ready to toss me! I am 46. Please hang in there, don't lose hope -- that's what will keep you going & get you, if not 100% well, at least better than you are now. Have you tried Traditional Chinese Medicine and Acupuncture (by a GOOD acupuncturist, board certified & able to dispense standardized, stronger herbs)? If not do so. But only via a reputable, well trained practitioner in TCM (you might consider looking at this website: www.aaom.org; also there are sites on EBV) I am so much better after 4 yrs of suffering. That and forcing myself to get out & walk, draw/journal your feelings, find friends who will stand by you -- but just do NOT give up. Life IS worth living; focus on what YOU CAN DO -- not what you can't. God bless you, sweetie. Write me and let me know if this works, or helps at least!