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I've had syringomyelia for some years now and to be honest it's a pain in the neck! I had a hindbrain decompression operation performed by Mr Bernard Williams in Birmingham,England. That was way back in 1991 and since then he was sadly killed in a motorbike accident. I still have a lot of pain but have learned to put up with it with the help of a TENS machine and medication. I have a very understanding doctor who helps as much as he can. I guess it's just one of those things that people who suffer this disease have to put up with. If anyone wants to contace me just to talk about syringomyelia then great, it really helps to talk to someone who has the same problem. My husband and daughter try to understand but it's difficult for them to understand what it's like to be in pain 24 hours a day and 52 weeks a year with no letup, it's hard.