I am 21 and I have recently been diagonosed with having this disorder. Apparently there are only 70 people world wide with this disorder of the same age range. At the moment I am stable yet my platelet count is dropping quite fast. At present I am being seen on a monthly basis. When my condition begins to deterioate the doctors hope to carry out a bone marrow transplant. My brothers have been tested for suitable donors and I am awaiting the results. Is there anyone out there of a similar age with the same disorder.