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I have a friend at work who has a niece with a little girl diagnosed the first week of birth with Turner Syndrome. She is older now and has many problems. I was told that this young woman whose name is Cyndy would be glad to talk by e-mail to mother's of children with this disease Cynda is extremely knowledgeable on this disease and has had ongoing situations since her birth. She is a wonderful and caring mother and has a lot of insight to what these children face every day - even now with the Public School System. Good Luck everyone.