My 3 year old grandson has just been diagnosed with complete achromatopsia. I'm having a hard time getting information on this as I see is everyone else. His mother has been told he will need to go to a school for the blind and will be assigned a social worker from the commission for the blind. I'm wondering if any one knows if my other daughter can be tested for the gene to see if she is a carrier? Should my son be tested as well as I have heard that only girls can pass this on?? Thank you for any help you can give me on this..