Alice McDonald
I still misspell everything but I was told too that I have EBV but also Polymyalgia/Possible sjogrens syndrome. It has been a nightmare. I had feaver for over l year exhausted l0 minutes after I woke up severe pain all over my body. Now my eyes are dry and I put sterile vaseline in them daily to stop the pain in my eyes. Also my vulva is always burning stinging and itching. I must rest daily and sometimes I must rest for 2 to 3 weeks at a time in order to correct my exhaustion/flare up. This has been going on for l5 years I am learning how to manage exhaustion pain in my life as the new me. You must have a great Rheumotoligist It is expensive and Kaiser hasnt helped me much at all. I must seek help at l50Dollars on the outside of Kaiser out of my own pocket. This is serious illness and keep on it with a good Dr. You must be your own Advocate for your health. Take Care