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Epidermolysis Bullosa Acquisita

adrian

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WhilstI understand and sympathise with anyone who has been diagnosed with EB, I am extremely frustrated by our medical profession. They seem unable to explain where EB "Acquisita" which is a variant of EB fits in. To my knowledge, hardly anyone in the world has been reported to be diagnosed with this "Acquisita" variant. Am I really alone? on this, can anyone shed some light, perhaps there is another sufferer somewhere in this world, and reading this. If so please !!!!!! E-mail me your reply.

 
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