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Hello. I'm hoping this will make it to the forum because I am in desperate need of help. I am in an acne study. But, 2 months ago, my doctors told me that I was developing a bacteria that was killing my red blood cells. They said it was a very rare disease called Tziscterineuole. They said it was deadly and I have 6 months to live (this said in May). I desperately need help from anyone that has had this disease or has heard of it. Can someone please let me know what the symptoms are and if I do only have 6 months to live? It is greatly appreciated.