SANDRA
Message 1 of 1
DEAR BELINDA, I HAVE SUFFERED WITH INTERSTIAL CYSTITIS FOR NEARLY 3 YEARS BUT SAYING THAT IT SEEMS LIKE FOREVER AND AM NOT GETTING ANY WHERE FAST AND I UNDERSTAND THAT YOU HIDE YOUR PAIN FOR THE SAKE OF FAMILY. BUT BY DOING THIS I FIND THEY THINK YOUR PROBLEM IS GONE AND IS BETTER WHICH IS QUITE DEPRESSING BECAUSE AT TIME YOU WANT TO SAY LISTEN AM NOT BETTER I'M DOING THIS TO SAVE YOU FROM SUFFERING IF THIS MAKES ANY SENSE TO YOU BUT I DO UNDERSTAND YOUR FEELING'SMY CONSULTANT WHO I FEEL IS NOT VERY UNDERSTANDING IS SUGGESTING ONE MORE CYSTOSCOPY WITH BIOPSIES AND TO TRY ME ON TAGAMET WHICH I ALREADY TAKE LOSEC SO I CANT SEE THAT MAKING ANY DIFFERENCE!