Hi Nancy, and thank you for responding. I'm not sure about Chiari yet. Doctor says it's in the high normal range and he's not sure if it's causing obstruction or not. He's had a CINE MRI done but no results yet. I'm really sorry about your daughter's chiari and syrinx. Where and who is doing the surgery? Is it the decompression surgery only or will they drain the syrinx too? any info you may share will really help. I will try the "our chiari kids board. Thank you so much. All my prayers and good wishes for your daughter's success and speedy recovery.