There are gentic tests that can be done during the first 12 weeks of your pregnancy. it is called Chroinic Villi Sampling or CVS. Its usually done at 9 weeks of pregnancy with results before you are 12 weeks so you can decide the future of the pregnancy. With you carrying the trait and your husband with the disease you carry a 75% chance or 3 out of 4 chance of the baby having the disease. Contact a good prenatal genetics program. I am a trait carrier as also is my husband. We have a child with the disease and child with trait only. We had gentic testing with her and knew before I was even 12 weeks pregnant so we could decide how to handle the pregnancy.